HELP IS URGENTLY NEEDED TO ASSURE APPRORIATE ACTION:
On Tuesday, January 26th and
Wednesday, January 27th, Lyme patients and advocates will
call on Congress to take decisive action regarding the
uncontrolled epidemic of Lyme and related tick-borne diseases.
Disease Association Urges DC Lyme Bill Action Now
What Action Needed: Contact your own 2 US
Senators today by email or phone. Click
here for Senators
You can scroll down list to find your Senators or
you can put your state name in the search box in upper right and
your 2 senators will come up. Both email contacts and phone
numbers are included in this official list.
What to say to Senate offices on phone or in email:
1. Your name and address.
2. Tell Senator XXXXX to co-sponsor S 1503, the Lyme bill.
3. The bill would form a Lyme & Tick-Borne Diseases Advisory
Committee in DC with patient representation.
4. The CDC says more than 300,000 new cases of Lyme occur each
5. Tell them in a few sentences only how Lyme affects you, your
family, friends, neighbors
6. Thank them.
History: The "21st Century Cures Act", HR 6, passed the US House
of Representatives and included the Lyme text of HR 789
(Gibson-NY). HR 6 was sent to the Senate for consideration. LDA
supports the Lyme language in the 21st Century Cures Act.
However, the Senate can act on HR 6 as is, but it can also amend
it, or develop a new bill. The danger in amending the existing
"Cures" bill or developing a new bill is the Senate may remove
the Lyme language.
Why Action Needed: A bill, S 1503 (Blumenthal-CT), was
introduced in the Senate in June. It is a companion bill to HR
665 (Smith-NJ) introduced in the House in February. At this
time, because of possible Senate action when Congress comes back
in session after Labor Day, we need to take action to get more
sponsors onto the Senate version of the bill. If the Senate
removes the Lyme language from the 21st Century Cures Act that
the House passed, then the Senate might look to incorporate
other Lyme language found in a bill that has sufficient Senate
support (co-sponsors). The Senate could possibly move the Lyme
bill on its own also (called a standalone). We need to be
Bill Details: See information on bills
Click here for Blumenthal Bill (S 1503)
Click here for Smith Bill (HR 665)
Click here for 21st Century Cures (HR
NOTE BEFORE ACTING: Senators (below) have already signed on. You
do not need to contact them.
Sen. Ayotte, Kelly [R-NH]*
Sen. Gillibrand, Kirsten E. [D-NY]*
Sen. Schumer, Charles E. [D-NY]*
Sen. Reed, Jack [D-RI]*
Sen. Whitehouse, Sheldon [D-RI]*
Sen. Klobuchar, Amy [D-MN]*
Sen. Coons, Christopher A. [D-DE]*
Sen. Casey, Robert P., Jr. [D-PA]*
Sen. King, Angus S., Jr. [I-ME]
Sen. Blumenthal, Richard [D-CT] (sponsor)
- FOR MORE INFORMATION ON THESE
PLEASE GO TO OUR ACTION/ALERTS PAGE