Welcome to the Arizona Lyme Disease Association website


Meeting Schedules




Academy Award semifinalist UNDER OUR SKIN brought unprecedented awareness to the shocking story of Lyme disease, an often-chronic condition many doctors claimed was “all in your head."  Since then, the CDC has upped its estimate of annual cases by ten times, making Lyme disease more prevalent than HIV and breast cancer combined.  This highly-anticipated sequel investigates the deepening Lyme disease crisis and follows its casualties and controversies.  As the Lyme epidemic explodes globally, scandalous medical collusions and conflicts of interest incriminate the very healthcare systems meant to protect us.  Despite the obstacles that researchers, physicians and patients continue to face, promising new findings are emerging.  And when we revisit the unforgettable characters from UNDER OUR SKIN, we see that they have moved from horror to hope, arriving at better health and reclaiming their lives. 


The Loft cinema is located at 3233 E. Speedway Blvd.  $8 admission/$6members


1 pm - The Arizona Lyme Disease Association Tucson Chapter will be hosting an Information table in the Lobby

2 pm - View “Unrest” followed by a post film Q&A with “Unrest” producer and native Tucsonan, Alysa Nahmias. 

This acclaimed, Sundance award-winning, documentary offers a compelling and highly personal look at the often mysterious medical condition known as Chronic Fatigue Syndrome.

In the film thenty-eight year-old Jennifer Brea is working on her PhD at Harvard and months away from marrying the love of her life when she gets a mysterious fever that  leaves her bedridden and looking for answers. Determined to live, she turns her camera on herself and her community – a hidden world of millions confined to their homes and bedrooms by ME, commonly called Chronic Fatigue Syndrome. “Unrest” is, at its core, a love story. How Jen and her new husband forge their relationship while dealing with her mysterious illness is at once heartbreaking, inspiring and funny. (Dir. by Jennifer Brea, 2017, USA, 90 mins., Not Rated)





The Lyme Disease Association (LDA) reports that the total number of Lyme cases in the US is now approaching 400,000 per year.

The report is based upon the just released CDC's MMWR final reported Lyme case numbers for 2015.  The 3 states with the highest case numbers are from the Mid-Atlantic region: Pennsylvania, New Jersey and New York.  These three states constitute 48% of the Lyme case numbers in the US.  LDA president Pat Smith said "Lyme case numbers continue to surge, yet government is doing little to combat this massive epidemic, which destroys families and costs lives."

The LDA has ranked the top 15 states based on those CDC reported Lyme case numbers.
The table below has state, followed by CDC reported number, and the number adjusted by a factor of 10 for underreporting.
USA Case Map

Total US 38,069------------------------------------------------------380,690
US Total Reported Cases 1990-2014

  90,4801. Pennsylvania 9,048--------------------------------------------

2. New Jersey 4,855------------------------------------------------- 48,550

3. New York 4,314 (combined NYC & upstate) *-------  43,140

4. Massachusetts 4,224-------------------------------------------- 42,240

5. Connecticut 2,541------------------------------------------------ 25,410

6. Wisconsin 1,894-------------------------------------------------- 18,940

7. Minnesota 1,805-------------------------------------------------- 18,050

8. Maryland 1,728--------------------------------------------------- 17,280

9. Virginia 1,539------------------------------------------------------15,390

10. Maine 1,201----------------------------------------------------- 12,010

11. Rhode Island 904------------------------------------------------ 9,040

12. Vermont 710------------------------------------------------------ 7,100

13. New Hampshire 529-------------------------------------------- 5,290

14. Delaware 435----------------------------------------------------  4,350

15. Iowa 318----------------------------------------------------------- 3,180

* Many counties (19 in 2014) in New York State investigated a sample of positive laboratory results. The number of Lyme cases was then extrapolated to generate estimates of the total number of cases in that particular county. The CDC says it cannot publish averages, thus many counties in NY do not have their numbers reported out by CDC.  The LDA does not know how many NY counties in 2015 are contained in the CDC numbers above.
From the Florida Lyme Disease Association:

From NPR: Forbidding Forecast For #Lyme Disease In The Northeast #lymeisabacterialinfectionnotviral #lymeiseverywhere #fundlyme

The explanation is simple: Mice are highly efficient transmitters of Lyme. They infect up to 95 percent of ticks that feed on them. Mice are responsible for infecting the majority of ticks carrying Lyme in the Northeast. And ticks love mice. "An individual mouse might have 50, 60, even 100 ticks covering its ears and face," Ostfeld says.

So that mouse plague last year means there is going to be a Lyme plague this year. 


FLDA/LDC Interesting Fact: Did you know that Georgia, located in the deep south, was the #4 state for reported Lyme cases in 1989? True. http://georgialymedisease.org/ After the reporting criteria was changed by the CDC, reported (but not actual) cases fell dramatically along with acceptance that Lyme is in the south. 

The current tests for Lyme, that the CDC uses for reporting criteria, were developed to detect a single strain prevalent in the northeast. So, it is not surprising that the northeast would have the greatest number of reported cases. While this article focuses on Lyme in the northeast, it is critical to recognize that Lyme is a global health problem that is vastly under-recognized in areas with divergent borrelia strain

Bill Details: See information on bills
Click here for Blumenthal Bill (S 1503)
Click here for Smith Bill (HR 665) 
Click here for 21st Century Cures (HR 6)

NOTE BEFORE ACTING: Senators (below) have already signed on. You do not need to contact them.
Sen. Ayotte, Kelly [R-NH]*
Sen. Gillibrand, Kirsten E. [D-NY]*
Sen. Schumer, Charles E. [D-NY]*
Sen. Reed, Jack [D-RI]*
Sen. Whitehouse, Sheldon [D-RI]*
Sen. Klobuchar, Amy [D-MN]*
Sen. Coons, Christopher A. [D-DE]*
Sen. Casey, Robert P., Jr. [D-PA]*
Sen. King, Angus S., Jr. [I-ME]
Sen. Blumenthal, Richard [D-CT] (sponsor)



Fundraiser    Please help support AzLDA

Donations are greatly appreciated and tax deductible.
Help support AzLDA and it's all volunteer staff.
PO Box 35637
Tucson AZ 85740

Website addition and updates


Joseph J. Burrascano MD Aug. 2010 update
HGRV- Human Gamma Retro Virus




Phoenix support Group

Meeting 3rd Saturday of each month  1 - 3pm See support Groups page

Tucson Support Group  

Meeting 2nd Saturday of the month 2 - 4 pm  See support Groups page

PO Box 35637
Tucson AZ 85740

info @ azlyme.org  (close space before and after the @ symbol)

DISCLAIMER: All information posted on this site is provided for educational purposes only. It is not to be construed as medical advice regarding the treatment of any symptoms or disease. You should obtain medical advice of your personal physician before pursuing any treatment mentioned here.